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FOI Request

Disclosure ID
FOI/02554
Request Date
July 10, 2018
Subject
Sex Development
Description
  1. Who provides expert evaluation of gender assignment in newborns with Disorders of Sex Development?
  2. Does the trust use a multidisciplinary team that deals with the evaluation and long-term management and needs of patients with Disorders of Sex Development?
  3. If yes to question 2, can you provide contact details for the team?
  4. What specialties are represented on the multidisciplinary team (e.g. paediatric subspecialists in endocrinology, surgery, and/or urology, psychology/psychiatry, gynaecology, genetics, neonatology, and, if available, social work, nursing, and medical ethics)? Please list them.
  5. When dealing with Disorders of Sex Development, what guidelines, if any, do decision makers follow?
  6. How many people are referred to this team per year (please give numbers for the last five years)?
Response
  1. Babies are seen by general paediatricians for their newborn examination and if there is a question of intersex, they are referred to Royal Manchester Children’s Hospital.
  2. N/A
  3. N/A
  4. N/A
  5. N/A
  6. This data is not readily available and would require a manual trawl through paper records which would constitute a disproportionate effort to retrieve and would exceed 18 hours. This information is therefore exempt on the grounds of cost (Section 12(1)).
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