There is a dedicated charity in the United Kingdom that supports patients with multiple myeloma and this is called Myeloma UK. The home page for their website can be found here.
This is an excellent website with a huge range of information for patients. There are a number of videos which can be found on the home page discussing newly diagnosed myeloma, initial treatment and relapsed myeloma. There is an excellent link into patient services which can be found here.
Topics that are included include the following:
- A myeloma information line which provides practical advice and emotional support.
- Numerous information leaflets on myeloma can be found here.
- Information on myeloma support groups can be found here.
- Frequently asked questions can be asked here.
- Audio recordings discussing different aspects of myeloma and the work of Myeloma UK can be found here:
- Video clips of experts discussing many aspects of myeloma. The link to these videos can be found here:
- There is also a discussion forum on the Myeloma UK Website where patients and their families can share their experiences and information with other patients, carers and family members. This can be found here:
http://www.myeloma.org.uk/patient-services/discussion-board/There is also a very useful glossary which helps patients and their families have a better understanding of words frequently used in cancer care. This can be found here
The Lymphoma Association is an excellent website that provides free information and emotional support for anyone affected by lymphatic cancer.
Their home page can be found here:
Information and support on the Lymphoma Association website can be found here
There is a huge list of publications that can be viewed on line and these publication lists can be found here
These publications include:
- Symptoms of lymphoma
- Lymphomas in general
- Hodgkin’s lymphoma
- Non-Hodgkin’s lymphoma
- At the hospital – especially describing various tests that may be required when lymphoma is either suspected or diagnosed
- Treatments for lymphoma
- Possible side effects of treatment for lymphoma
- Clinical trials in lymphoma
- Living with lymphoma
- Children and young people affected by lymphoma
- Lymphoma in later life
There are also active forums through the Lymphoma Association for patients where patients and their families can get further information on specific topics in lymphoma and the link can be found here
Stem Cell Transplantation
There is a range of information available through the major support organisations about stem cell transplantation. There is a section on the Macmillan Cancer Support Website about stem cell and bone marrow transplants and this can be found here:
This provides information on allogeneic (donor) stem cell transplantation, as well as high dose treatment with stem cell support (autologous transplantation).
The Lymphoma Association also provide information on both autologous stem cell transplantation:
And allogeneic stem cell transplantation:
The Myeloma UK Website has an information guide on high dose therapy with autologous stem cell transplantation and this can be found here
High Dose Therapy Guide
There is also a video on the role of stem cell transplantation in myeloma on the Myeloma TV Website and this can be found here:
VIDEO: Role of Stem Cell Transplantation in Myeloma
The Leukaemia and Lymphoma Research Website has information on stem cell transplantation:
The Seven Steps guide for bone marrow transplantation can be found here:Seven Steps for Bone Marrow Transplantation
Undergoing high dose therapy and autologous stem cell transplantation booklet can be found here:High Dose Therapy and Autologous Stem Cell Transplants