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FOI Request

Disclosure ID
FOI/02749
Request Date
October 5, 2018
Subject
Prostate Cancer
Description

In line with the Freedom of Information Act (2000) Tackle Prostate Cancer and The Red Sock Campaign (supported by Wicked Minds healthcare consultancy) would like to understand what specific psychological support is offered to men living with prostate cancer through your organisation. We would therefore be grateful if you could respond to the following questions:

 

  1. How many prostate cancer patients (new and existing) were registered within your Trust/hospitals between 1st April 2017 – 31st March 2018?
    1. Of those how many were offered specialist psychological support services in the last 12 months (1st April 2017- 31st March 2018)?
    2. Of those how many were referred to specialist psychological support services in the last 12 months (1st April 2017- 31st March 2018)?

 

  1. Do you offer psychological support services for families and or carers? (Yes or No)
    1. If yes, how is this service offered? (e.g. everyone is proactively offered a referral as standard of care, or do families/carers request access to psychological support reactively)
    2. What proportion of families/carers were referred to psychological support services in the last 12 months (1st April 2017- 31st March 2018)?

 

  1. Do men have access to other psychological support services beyond active treatment (i.e. those that are under active surveillance and living beyond cancer)? (Yes or No)

 

  1. Who provides other psychological support service for your prostate cancer patients? choose from below:
    1. NHS commissioned mental health service (funded by CCG/NHS England or Trust)
    2. National charitable organisation (e.g. Macmillan, Prostate Cancer UK)
    3. Local support group (volunteer-led)
    4. Hospice
    5. Other (please specify)

 

If it is not possible to provide the information requested due to the information exceeding the cost of compliance limits identified in Section 12, please provide advice and assistance, under your Section 16 obligations, as to how I can refine my request to be included in the scope of the Act.

Response

1 – 148

 

1a – We do not routinely record the requested data and to determine if we hold this information would require a manual trawl through paper records. This would constitute a disproportionate effort to retrieve and would exceed 18 hours. This information is therefore exempt on the grounds of cost (Section 12(1)).

 

1b – Please see response to 1a.

 

2 – Yes

 

2a – Referrals can be made direct to our Macmillan Information Support Centre and Carers Centre Services, Drop ins and self-referrals – promoted by our clinical teams at point of diagnosis

 

2b – Information not held as our Macmillan Service was new at the requested time period.

 

3 – Yes – Patients will be seen by a specialist nurse at diagnosis and maintain this relationship as a Key Worker, They will be offered a holistic needs assessment (HNA) at diagnosis, after treatment and can request at any time to be seen. They will be offered ongoing support from our Macmillan information Support Centre and the manager is a Macmillan Nurse. 30.5% Urology patients took up an offer of a forma HNA (not broken down to prostates)

 

4a – Yes

 

4b – Macmillan, Cancer research UK, prostate Cancer UK

 

4c – Local Patient led support group in place

 

4d – Yes

 

4e – Specialist Nurses, Palliative Care Teams, GP/community nurses

 

The information in this response is provided under the terms of the Open Government Licence. Please see here for more information:

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