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FOI Request

Disclosure ID
FOI/02463
Request Date
May 23, 2018
Subject
Cerebral Palsey
Description
  1. What is the total number of children and young people diagnosed with Cerebral Palsy by your Trust/Health Board in the last five years? (N.B.: this should be recorded as a total figure rather than figures for each year individually.)
  2. What is the care pathway for children and young people with cerebral palsy in your Trust/Health Board? Please provide a copy of this if possible.
  3. Is there a specific timescale set out in your care pathway for referral to a child development service for diagnosis of cerebral palsy from the point when symptoms are initially identified? If so, please provide this data.
  4. What is the total number of:
    1. Health visitors employed by your Trust/Health Board?
    2. Specialist health visitors for children with special needs employed by your Trust/Health Board?
  5. What training is given to healthcare professionals, including health visitors and GPs, to recognise the risk factors and possible symptoms for Cerebral Palsy?
  6. What is the total number of specialist staff employed by your Trust/Health Board, who are trained to work with children and young people with Cerebral Palsy, from the following disciplines:
    1. Paediatric speech and language therapy
    2. Paediatric physiotherapy
    3. Paediatric occupational therapy
  7. How many children and young people with Cerebral Palsy are currently on a waiting list to access any of the above services within your Trust/Health Board?
Response
  1. 30 (by looking at our caseload of children with CP of relevant age)
  2. Children with concerns about their development are referred to the CDC. There is a referral form with guidance to facilitate this. There is also an enhanced developmental follow up pathway for children born less than 30 weeks gestation or with other risk factors in compliance with NICE guidelines
    There is not currently a pathway to take children all the way through childhood and through transition to adult services
  3. As above children should be referred at the point where there are concerns identified. Time for a consultant appointment is generally around 8 weeks but can be from 2 – 12 weeks depending on volume of referrals and information in the referral. Therapy waiting times also vary but if a concern re CP is identified in the referral these referral are prioritized for therapy intervention
  4. :-
    1. WTE of 95.63
    2. 3
  5. Recognition and management of cerebral palsy is part of medical paediatric training. Newly appointed HV’s in the area have the opportunity to attend clinics at the CDC if requested. Some GP’s will have done Paediatric training. Others will have done Child Health Surveillance which should highlight relevant information. However not all GPs will do this training
    Child development is an integral part of HV training and HVs are thus best placed for early identification of any child not reaching developmental milestones
  6. :-
    1. 44
    2. 14
    3. 24
  7. The Trust is not aware of any children on a waiting list for these services preschool.
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