FOI Request
- Disclosure ID
- FOI/01015
- Request Date
- June 9, 2016
- Subject
- Haemochromatosis
- Description
I would like to request under the Freedom of Information Act the following information from the NHS Trust(s) which you are responsible for :
- the number of patients treated with haemochomatosis in 2015 who are in maintenance phase of the treatment (*)
- the number of patients treated with haemochomatosis in 2015 who are in PRE-maintenance phase of the treatment (+)
- a copy of the clinical protocol(s) used to treat haemochromatosis
- a copy of the clinical protocol(s) for therapeutic venesection
(*) “maintenance phase” relates to patients whose ferritin is <=50 ug/L
(+) “PRE-maintenance phase” relates to patients whose ferritin is in excess of 50 ug/L
- Response
1. There were 109 patients with a haemochromatosis diagnosis in 2015. Between them they had a total of 479 Admissions. It is not possible to break down the information further as the ferritin level is not recorded in our system and to retrieve this would require a manual examination of case notes and would exceed the cost limit.
2. See above
3. We do not have protocols
4.We do not have protocols